Monday, January 31, 2011 10:50 PM, CST Day 36 on VECTTOR
We dropped our morning treatment per the doctor’s recommendations so we are only having to do one 80 minute treatment at night!! YEA!!! I was not sure we would ever get past the 30 day mark for two 80 minute treatments a day (morning and night) but we made it. Gabe was such a trooper and did incredible. I am also proud to say that Traci and I did not miss a single morning treatment and were diciplined enough to make it happen. Great job Traci as it truly was a partnering effort and I could not have asked for a better partner!!! This is a realtively short update but still a great one as progress continues to be made. Gabe started school in August and I have mentioned before that I could count on three fingers how many green dots he has received (remember from previous posts that a green dot in our school system means a great day). Since being on the machine he as received smiley faces every hour with the exception of one or two here and there (it is done by hour in his school for him). He did have one BAD day a few weeks ago. Friday was a perfect day with no sad faces and today was the best day yet!!! A perfect day and a recognition from the Principal!!!!!!! Yea!!!! So Gabe got to go to the Principal’s office to receive a recognition! He got off the bus, RAN in the house and yelled “Daddy…I got a Wekanition (misspelling intended)!!” I could not believe my ears so I ran up the stairs and he had it stuck to his shirt with a sticker. UNBELIEVEABLE!!! This is what it said…there were four things checked:
1) Showing Initiative
2) Showing Effort
3) Displaying a highly commendable attitude
4) Other – Insisited on opening his lunch containers all by himself!! Took a little while but he was able
to do it!!!
This is what his teacher, principal, and OT put on the recognition!!! YEA!!! You have no idea how incredible this is for him and us. Parents of DMD children will understand but this is huge! Way to go Gabe!!! I am so proud of you and you are my hero! Gabe’s Dad
We dropped our morning treatment per the doctor’s recommendations so we are only having to do one 80 minute treatment at night!! YEA!!! I was not sure we would ever get past the 30 day mark for two 80 minute treatments a day (morning and night) but we made it. Gabe was such a trooper and did incredible. I am also proud to say that Traci and I did not miss a single morning treatment and were diciplined enough to make it happen. Great job Traci as it truly was a partnering effort and I could not have asked for a better partner!!! This is a realtively short update but still a great one as progress continues to be made. Gabe started school in August and I have mentioned before that I could count on three fingers how many green dots he has received (remember from previous posts that a green dot in our school system means a great day). Since being on the machine he as received smiley faces every hour with the exception of one or two here and there (it is done by hour in his school for him). He did have one BAD day a few weeks ago. Friday was a perfect day with no sad faces and today was the best day yet!!! A perfect day and a recognition from the Principal!!!!!!! Yea!!!! So Gabe got to go to the Principal’s office to receive a recognition! He got off the bus, RAN in the house and yelled “Daddy…I got a Wekanition (misspelling intended)!!” I could not believe my ears so I ran up the stairs and he had it stuck to his shirt with a sticker. UNBELIEVEABLE!!! This is what it said…there were four things checked:
1) Showing Initiative
2) Showing Effort
3) Displaying a highly commendable attitude
4) Other – Insisited on opening his lunch containers all by himself!! Took a little while but he was able
to do it!!!
This is what his teacher, principal, and OT put on the recognition!!! YEA!!! You have no idea how incredible this is for him and us. Parents of DMD children will understand but this is huge! Way to go Gabe!!! I am so proud of you and you are my hero! Gabe’s Dad
RSS Feed
